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Xiaoshan
Written by Kristin Ricci   
Wednesday, 15 April 2009 08:02

The hospital we are currently staying in is located in a district about 20 minutes outside of Hangzhou.  I guess you could call Xiaoshan a suburb even though there are about 1.6 million inhabitants.  The city of Hangzhou has somewhere between 7-9 million residents.  Our hospital is called the Zhejiang Xiaoshan hospital and from our understanding it is well known as a "birthing" hospital.  The 20th floor (ours) is for stem cell treatments for foreigners.  There are a bunch of patients here from Hong Kong, but Hong Kong is almost like it's own country in China.  One of the interpreters here told us that citizens of mainland China need a passport to even visit Hong Kong.  There is another floor in this hospital for the mainland Chinese citizens to undergo stem cell treatment as well.

Most patients from the unit are from America, Canada, Australia, Romania, Japan and Italy.  With each of our trips I'd say probably half the unit is American or Canadian.  Each room has one double bed and either a hospital bed or hospital crib depending on the age of the patient.  All of the rooms are private for one family with a private bathroom.  The bathroom has a sink with a small vanity, the john, and a walk in shower...kinda.  There's pretty much just a drain in the middle of the bathroom floor, so everyone wears shoes in the bathroom at all times unless you want your socks soaking wet.  

Every room also has a 25 inch TV with a DVD player.  The unit has a huge DVD collection of movies that just came out in theaters.  They're really cheap and fun to read the subtitles.  Our room always has fresh water from one of those water dispensers you always see in office buildings.  The hot water feature always works, so you can make a cup of tea or instant whatever at the drop of a hat.  There's also air conditioning which is definately a plus!!!  Every room also has at least one tall dresser to stuff your clothes/suitcases in and a couple smaller bedside dressers.  There's a tiny refridgerator in every room like the ones everyone had in college to store their 6 packs.  Don't worry, handsome guy is only allowed space for 2 cans of Reeb.  The rest of the space is used for Drew's various dairy products and my honey aloe tea.  Our unit also has 2 small kitchens to cook in, store extra food, or put food in a big deep freezer.  There's also a community storage area that everyone can leave or take items from.  I (Kristin) usually leap for the gigantic jars of peanut butter and some silver ware, plastic plates, etc.  One kitchen in particular has two giant sinks to wash your dishes in.  This is the first time Handsome Guy has ever begged and pleaded to clean the dishes.  It's a great place to chew the fat with our fellow neighbors here.

Our unit wraps around in a circle with the elevators taking up most of one side, patient rooms taking up two sides, and the therapy rooms taking up the other side.  The nursing station is in the middle with a large room behind it with maybe 5 computers for the doctors/staff to use.  The main therapy room has 3 padded tables that are about 2 feet off the ground.  I'd say they are almost the size of a queen bed.  This is where the business happens.  The patients receive 1 hour sessions 5 days per week by a physical therapist.  There are also two adult sized standers in the same room, so this is definately the place for all of the action during the day.  If the patients need standing time, they receive at least 1/2 hour 5 days per week.  There is also a standing station out at the nursing station that I noticed most of the adult patients flock too. There is pretty much just one strap for support in the back, so you need pretty good posture for this type of standing.

The other therapy room is pretty much just called "the amusement room."  There is a little kid section with toys, one therapy table, a couple of couches, a 42"  flat panel TV and a couple of computers.  There actually wasn't even room for all of the patients this morning.  So this one local mother who brings her 2 year old in for PT every day shared our table with Drew.  We got a couple of cute pictures of the kids listening to Drew's Dora book.  They each got a turn turning the pages.

Tonight we had some time after dinner to take a walk around the hospital.  It was the perfect night.  We walked over to People's Square which is huge.  We got to watch a bunch of little kids roller blade and their crazy instructor practically run them over.  Then we watched these huge kites complete with blinking lights fly in the sky.  Next we watched the teenagers of stake boards with wheels that flashed a bunch of different colors.  Then we observed the Chinese version of the electric slide with probably 40-50 women dancing.  Drew was of course busy flirting with the little girls shaking their bare booties.

 
Stem Cell Treatment #3
Written by Kristin Ricci   
Tuesday, 14 April 2009 07:46

Drew had his third stem cell treatment on Monday.  This was his second lumbar puncture which means he had to go downstairs  to the OR again.  The procedure took about 30 minutes and went smoothly.  The third floor waiting area was pretty crowded with about 20-30 people waiting for their loved ones as well.  When Drew was finished he was wheeled out in his crib and it suddenly turned into a madhouse!  Everyone crowded around Drew's crib to catch a peek of the Western baby.  Then he decided to grace everyone with a long yawn and a very loud fart.  The waiting area exploded with exclamations and laughter.  It was pretty funny.

Handsome guy aka "Wentworth" has been working his gift of gab and has the store manager of the local RT Mart hooked.  We had just entered the store and we heard a man yell out "Mike".  Now usually we both ignore it when people call out Mike's name because it's pretty common back home - but not so much here.  We both turned and it was the store manager from last August!  He remembered Mike's name!  The manager's name is Simon and takes annual business trips to the USA to check out different supermarkets.  Simon speaks excellent english and offered to take Mike out for a drink sometime soon.  I am also happy to say he has heard of Wegmans and is interested in checking it out.

He also was able to translate my new favorite food for me.  I am absolutely obsessed with these small clumps of sticky rice balls with red bean paste in the middle.  I also love this dish called Ants on a Tree that I can't even describe.  Wentworth is in love with fish soup which has sliced fish in a spicy broth.  We also love the drinks here.  I had the most perfect watermelon drink ever.  Drew prefers the tubes of drinkable yogurt, stuff-crust pizza, and waffle fries.

The weather continues to be very pleasant in the 70's and we've had a couple of thunder storms.  We also found out that the area we are staying in outside of Hangzhou called Xiao Shan is the 3rd most wealthiest area in China.  I guess this explains why every 4th or 5th car is a Lexus, Audi, BMW or Porsche Cayenne.

 

 
Stem Cell Treatment #1
Written by Kristin Ricci   
Friday, 03 April 2009 00:05

Drew had his first stem cell treatment on Friday the 3rd and everything went perfectly fine.  On our first trip he had 6 treatments, this time we will be getting a total of 8.  The first SCT is always via IV just in case there happens to be a reaction, they can immediately stop the transfusion.  I would like to take the opportunity to pat myself on the back with this one!  Drew has excellent veins but is stronger than the Incredible Hulk.  The nurses are alway able to place the IV on the first try because they are very skilled and because his mother has a grip of steel!

Once they place the IV, the 500ml bag of  "Dextrose and Saline" is connected.  Then they push what is referred to as "the anti-allergen".   Due to my height advantage here, I found out last time that the anti-allergen is Decadron, a steriod.  Next, Drew is carried from our room to the treatment room still screaming obsenities.  The small bag of stem cells is then infused into the line.  Each treatment contains between 10-15 million stem cells.  Once this is infused, the nerve growth factor is hung.  Nerve growth factor is extracted from the umbilical cord serum and it's duties include to encourage growth/repair of neurons and it also enhances the potential of the umbilical stem cells that are infused.  After this Drew is allowed to return back to our room, while the final flush bag is infusing.  This whole process usually takes around forty minutes. 

During this first transfusion, Drew definately put on a show.  Lots of screaming, stomping, and slapping.  We tried reading books, coloring, and watching Dora on our laptop.  Nothing!!!  He let everyone on the 20th floor of Xiaoshan Zhejiang Hospital know exactly how he felt about the process.  We ended up taking apart the IV pole.  One nurse held it high above our heads for gravity's sake (no Alaris pumps here) and we marched down the hallways with an entourage of at least eight people.  Mike held Drew like a little prince and all of us peons trotted behind.  Mike pointed out each plant to Drew until he was satisfied with the description.  Then the master would let out a shriek and we'd move on to the next one.  We definately provided a lot of entertainment for any onlookers!

 
Stem Cell Treatment #2
Written by Kristin Ricci   
Wednesday, 08 April 2009 00:00

Drew had his second stem cell treatment via a lumbar puncture on Wednesday, April 8th.  Drew moves around a bit too much (even after two rounds of valium!) to do such procedures safetly so this time all lumbar punctures must be performed under general anesthesia.  They warned us last time that he would have to receive the stem cells on the 3rd floor of the hospital if we decided to return again.  This is exactly what we did.  I'm not going to lie, it was scary having Drew wheeled away from us on an unfamiliar floor.  My confidence definately wavered but Drew was soon wheeled out giving us the thumbs up with a toothy smile. 

Two down, six more to go.....

After waiting outside the pre-op area everything went fine.  Drew did an awesome job during and after the procedure.  He laid flat on his back without complaining for the full 6 hours.  No complaints of pain whatsoever.  In fact I think he was relieved to have his TV time.  He is kept quite busy here.  He's receiving lots of therapy and standing time.  Also, we are able to take advantage of the great weather this time.  It's almost always in the low 70's, so we take a lot of long walks that we were never able to go on in August.

Make sure to read my previous posts.  I'm trying to catch up with my tardiness due to a really bad Internet connection for the entire first week of our stay.

 
And Finally, We're Here
Written by Kristin Ricci   
Tuesday, 31 March 2009 00:00

IMG_1306Here we are again folks!! We officially left the US early Monday morning and arrived Tuesday evening in Shanghai. This time we flew continental and had a great time. Drew's speech therapist flew with us and did a fabulous job entertaining our three year old. Luckily, Drew's “cadillac” stroller was not destroyed this time either. We also only had to bust out with the benedryl once and it was a 15 hour flight!!! Diane was lucky enough to sit next to an older gentleman in tight white pants and patent leather dress shoes...kind of like on The Griswalds Summer Vacation movie. It definitely made my trip right then and there.

Our car ride from Shanghai to Hangzhou took about 3 hours and Drew found it hilarious when people waved to us when they drove by. He loves it when people do a double take, he knows he's gorgeous and he likes to work his magic. This time they picked us up in a huge tour bus that could easily seat 12 people...we felt like movie stars.

 
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