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More News
Written by Mike Ricci   
Saturday, 16 May 2009 07:19

Now that we are home from China we will be adding to the functionality of our site.  Over the next few weeks we will be working on adding forums and adding articles.  Should you have any ideas for either please use the Contact Us link on our site to let us know!  In the mean time please read our entries from our trip to China for stem cell treatments or look at some of the pictures we've taken.

Thanks for visiting!

 
Umbilical Cord Stem Cells
Written by Kristin Ricci   
Thursday, 21 May 2009 14:32

Our son has received 14 stem cell infusions over the past year.  This was split into two visits.  Each stem cell infusion contains between 10 to 15 million stem cells.  The stem cells were derived from donated umbilical cords while we were in China.  Since each umbilical cord only contains between 100,000 to 300,000 stem cells, Drew also had received nerve growth factor infusions.  The nerve growth factor was extracted from the cord serum and it's main purpose is to encourage the repair of neurons.  Also, the nerve growth factor aids the potential of the stem cells.  Whenever Drew would receive his stem cell infusion, it was always followed with the nerve growth factor infusion.

Stem cells derived from umbilical cord blood would fall into the adult stem cells category.  Embryonic stem cells are derived from embryos that are at least a few days old.  These two types of stem cells are derived from two completely different sources.  Most of the information we've researched largely pertains to umbilical cord stem cells.  However, we are keeping our eyes open on embryonic stem cells transfusions around the world.  Our biggest concern would be adverse side effects.

Stem cells derived from umbilical cord blood contain a large reservoir of hematopoietic stem cells.  Hematopoietic stem cells (HSCs) are defined by their ability to form multiple cell types including neurons which is exactly what we were looking for!  Since umbilical cord stem cells are considered to be the most immature type of stem cell, they lack exterior protein markers (antigens), which means the host would not recognize the stem cells as foreign.  This means there are no incidences of graft vs. host disease.  I remember this was our greatest fear with proceeding forward with this treatment and we spent a long time scouring the Internet for adverse reactions to the treatment.

 
Welcome to Our Site
Written by Mike Ricci   
Saturday, 10 January 2009 00:41

Welcome to our website, HopeForCP.org and we hope you have found it as useful as we had fun creating it.  With all the information in the world at your fingertips today my Wife and I found that much of the information about treatments/therapy/etc for children with Cerebral Palsy varies greatly in quality and presentation.  Medical journals we found with information on CP were great but intimidating to read and often too detailed for a person without a PhD.  Other websites with information written in layman terms were good but sponsored by law firms and not caregivers, therapists or those diagnosed with CP.

Our goals with this website are to:

  • Educate family members who care for a loved one recently diagnosed with CP;
  • Inform caretakers, parents, therapists and those with CP about various therapies, treatments and equipment
  • Foster communication that results in better treatments and therapies
  • Improve the quality of life for those living with CP

As a visitor to our site we ask that you help contribute in any way you can whether it be sharing your experiences, writing up or evaluating a piece of equipment that's worked for your daughter or son or inspire others to help.  If you're someone living with CP, taking care of someone with CP or want to help improve the lives of others with CP this website was created for you!

-Mike & Kristin Ricci

 
Busy Month!
Written by Kristin Ricci   
Monday, 17 August 2009 12:03

It has been a busy month for the Ricci family.  We recently adopted our daughter, Lily from Korea.  She was flown into NYC with three other children on July 22nd otherwise known as her official "gotcha day."  We were very fortunate to have her with us before her 1st birthday, August 11th, so that we could celebrate!!  She came with a gigantic duffel bag filled with goodies and a hanbok dress.  It is tradition in Korea to where the dress on your 1st birthday.  She looked amazing in the vibrant pink colors.  I'll have to post some photos!

If anyone is interested, we used the Love The Children agency.  We started the adoption application packet in February and she arrived in July.  This turn around time is almost unheard of with international adoption.  I definitely recommend this agency to anyone who is interested.  There is a ton of paperwork but it is very organized.  They are a pleasure to work with.  Right now we are completing the four home visits by the local case worker, then we will file for adoption.  According to our adoption lawyer, we will officially be her legal guardians/parents sometime in the Spring.

As far as Mr. Drew, he is adjusting well to our newest little addition.  Unfortunately, I don't have much to update with our recent Florida trip.  As soon as we returned, he had a couple skin tags removed but because there was some cartilage involved, he needed general anesthesia.  So we stopped the medications from Dr. Hammesfahr right when we returned home.  Then he came down with some type of virus along with a double ear infection, so we haven't started him back on them yet.

Dr. Hammesfahr put Drew on a schedule with the medications he prescribed.  He is to have 2mg of Vinpocetine in the morning every other day along with a dose of topical Nitroglycerine.  The amount of nitro that we use is almost microscopic, maybe enough to cover the tip of my pinky finger...probably less.  On the days he isn't receiving these two medications we give him topical Quinapril.  The Quinapril is in a bunch of syringes and we give him 0.5ml of the cream.  It's very tiny too.  I'm probably going to start him back up on these medications later in the week or next week.  We are supposed to wait at least one week after Drew recuperates from any type of illness.

 I am also trying to work on our latest endeavor with Drew's therapy.  I am trying to obtain prescriptions for an HBOT soft chamber, an oxygen concentrator, and for oxygen.  The plan is to have Drew spend an hour every day in the chamber hopefully with Grandma.  Mom, it's supposed to help improve memory too!!  Wish me luck!

 
Pictures
Written by Mike Ricci   
Saturday, 11 April 2009 00:00

For those of you who'd like to check out our pictures from our 2009 China Trip check out our Google Picasa site: http://picasaweb.google.com/mdricci

We're currently in the process of testing out picutre-sharing functionality of the site and we'll be sure to let everyone know when its production-ready.

-Mike

 
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