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Mike is coming to town today! He arrives in Tampa tonight via AirTran at 1030pm. He is bringing a couple travel books with him to help jazz up our little medical trip here. Hopefully, Drew will be allowed outside this weekend for a little while so that maybe we can hit up Busch Gardens!
This morning was our 5th round of topical Nitrate. It was applied to his posterior calf again. Our schedule is changed slightly; today I am supposed to apply the cream myself at noon then we are to go in for another visit at 2pm. Dr. Hammesfahr also mentioned that he might be writing a new prescription for Drew this afternoon. He didn't mention what though.
We do have exciting news and I'm going to attribute this improvement to his parents/therapists/grandparents. Drew was reading a book with gaga and he read the word "hat" outloud for the first time. For the past couple of weeks he would sound out "h" and "t" together to say hat. He finally was able to bring them together. Other than ma ma, da da, etc. "hat" is Drew's first reading word. Don't worry we definitely gave Drew lots of high-fives and pats on the back.
One other improvement I noticed is that Drew is sitting really well in his carseat. He sits perfectly straight with his head straight up in the air. I can actually see several inches of his neck. He actually looks fantastic to the point of not being able to tell he has a disability. However, once he is out his tone is very tight. In fact, his legs are a little banged up from his Kimba Stroller. The Kimba is fantastic for keeping Drew in a sitting position (which is a challenge!), but it's all metal. There is always something that he seems to snag his skin on, no matter how much we pad the stroller. We do have a new special needs stroller on order that should arrive this summer. I will definitely write up a review on here on how it goes.
Well folks, that's all she wrote!
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Laurie
Laurie