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Resources
Written by Mike Ricci   
Wednesday, 13 May 2009 14:25

Below is a list of some websites you may be interested in researching for alternative therapies and treatments.

  • www.stemcellschina.com - We started our research here back January of 2008.  There are a ton of patients' blogs and little excerpts on patients' experiences on this website.  You can also read about various patient's before and after results with the stem cells.
  • www.beikebiotech.com - This website has a lot of information on the company and information on stem cells in the news.  You can also read about patient's experiences on this website too.
  • www.stemcellresearchnews.com - If I ever have time to kill (which is not very often), I go to this website to catch up on current headline news.
  • www.searchclinicaltrials.org - This website is great to keep up-to-date with clinical trials currently underway in the USA...that is if you live here!

I also highly recommend joining the www.yahoo.com group "BIA4KIDS" (Brain Injury; Alternatives 4 kids).  The group moderator is Kirshner Ross-Vaden, RN.  She was the VP of the Foreign Patient Division of Beike Biotech and their lead medical consultant.  However, she recently resigned from this position but she does still run this yahoo group.  This forum has a ton of information on stem cell therapy around the world, vasodilation therapy, HBOT, different supplements to take for brain injury, and a lot more.  If you ever have any questions you can do a search and find the answer on a past post or you can ask the group.  To be honest, I'm not big on posting questions because I can usually find them.  It's been around since 2005.

 
Opinions
Written by Kristin Ricci   
Sunday, 17 May 2009 10:27

We've been home for about one week and have been drilling everyone with what they thought of Drew's progress.  Both of Drew's grandmothers felt that his hands were more relaxed than usual.  I remember thinking the same thing after our first trip but then within a couple months his hands tightened back up again.  Also, both grandmothers noticed that Drew is talking considerably more.  He can now combine a few syllabels to form a few words like "bug" and "bus."  It's funny that he started doing this because he started saying these words before his first stem cell treatment in the beginning of April.  Dianne, Drew's speech pathologist, taught him this on the plane ride over.  In case you missed some of the earlier blog posts, she flew with us to China and spent a couple of weeks with us helping out with Drew.

The biggest news I have however pertaining to Drew's speech is that he has been able to say "ma ma" on request.  He's been able to "ma ma" once in a great while over the past couple of years but we think it was due to accident.  However, for the past few consecutive days he has been able to say "ma ma" when we ask him to.  Go Drew!

 

 
More News
Written by Mike Ricci   
Saturday, 16 May 2009 07:19

Now that we are home from China we will be adding to the functionality of our site.  Over the next few weeks we will be working on adding forums and adding articles.  Should you have any ideas for either please use the Contact Us link on our site to let us know!  In the mean time please read our entries from our trip to China for stem cell treatments or look at some of the pictures we've taken.

Thanks for visiting!

 
Finally Home
Written by Kristin Ricci   
Tuesday, 12 May 2009 08:40

goodbyeWe are home sweet home after 42 days abroad.  We are extremely grateful for all of the great care that Drew received while at the Xiaoshan hospital in Zhejiang.  The staff treated us like family and we already miss them like crazy.  We feel blessed that this treatment is available and that we were able to take our son over twice.  I'll give our parents a few days to make their own assessments to see if they notice any differences with Drew's overall ability.  Drew's physical therapist, Minnie, will also be seeing him on Wednesday for the first time since we've been home, so I will be sure to write updates for everyone.

While at the hospital Dr. Tony told us that Drew was still going through "the adjustment" period and that he suspected that we will notice improvements in 3 to 6 months.  After our first trip, Mike and I really started to notice improvements one month after his last SCT in August.  His explosive vomitting started to diminish slowly.  His oral motor control really started to improve too.  We were still seeing improvements in these categories when we returned in April this year, about 7 months later.  We met another family on their third trip to Hangzhou from England for there 2 year old daughter with CP.  They noticed that their daughter had a lot more gains the second time around.  Overall, we noticed there were several families who had already received stem cell treatments in the past and were back for another round.

 
Stem Cell Treatment #8
Written by Mike Ricci   
Tuesday, 12 May 2009 08:28

iv_treatmentDrew received his final stem cell treatment via IV on friday.  Everything went very smoothly and he only complained while the IV was being placed.  After the needle is removed he always likes to oversee the application of the tape.  When the nurse removed the IV on Saturday, he was also very calm, cool, and collective.  He likes to watch the tape and tegaderm peeled away.  He also likes to watch the nurses remove the hep lock and he always cranes his neck around to watch wear it will thrown out.  Then he definately makes sure that we apply pressure on the site with a cotton ball.  Since we went through this 8 times, the little rat definately had the routine down and he likes to rule the roost when he could.

This particular treatment was very interesting because there were so many different nationalities in one room.  There was a little boy from Wales with his mother who is also Welsh but her husband is Australian.  There was another mother and son from America but she was born in Jamaica.  Also, there was another little boy from Sweden but his father was from Spain.  The patient coordinator from Beike, Luca Ricci, was from Italy.  The nurses were Chinese.  Then finally the three of us from America but Drew likes it better when I say we are from planet stinky.

 
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